Internet Disability Resources for
Rehabilitation Counselors & Consumers

Disabled Sports USA is the most comprehensive site on the net for participant sports information and upcoming events.

Disabled Sports USA

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SITES THAT PROVIDE INFORMATION AND SUPPORT FOR CAREGIVERS

Family Caregiver Alliance
National Family Caregivers Association
Well Spouse Association

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SITES ADDRESSING MEDICAL CONDITIONS
OR SPECIFIC DISABILITIES

This site does not attempt to link to every creditable site that contains information on a specific medical condition or disability. Links are highly selective.

Acid Maltase Deficiency (Pompe Disease)

Acid Maltase Deficiency Association

Acoustic Neuroma

Acoustic Neuroma Association

Achromatopsia

Achromatosia Network

Adrenal Diseases

National Adrenal Diseases Foundation

AIDS & HIV Infection

AIDSINFO (US GOV)
AIDS.ORG
American Autoimmune Related Diseases Association, Inc.

Albinism and Hypoplgmentation

National Organization for Albinism and Hypoplgmentation

Alcoholism and Drug Dependency

Alcoholics Anonymous
National Council on Alcoholism and Drug Dependence, Inc.
National Institute on Alcohol Abuse and Alcoholism (US GOV)

Allergy and Asthma

Allergy & Asthma Network - Mothers of Asthmatics, Inc.
Asthma and Allergy Foundation of America
National Institute of Allergy and Infectious Diseases (US GOV)

Alopecia Areata

National Alopecia Areata Foundation

Alzheimer's Disease

Alzheimer's Association
Alzheimer's Disease Education & Referral Center

Amputation

Orthotics & Prosthetics Online Community

Amyloidosis

Amyloidosis Support Network

Amyotropic Lateral Sclerosis (Lou Gehrig's Disease)

ALS Association

Angelman Syndrome

Angelman Syndrome Foundation, USA

Anxiety Disorders

Anxiety Disorders Association of America

Aplastic Anemia

Aplastic Anemia Foundation of America

Arthritis

Arthritis Foundation
Arthritis National Research Foundation
National Institute of Arthritis and Musculoskeletal and Skin Diseases (US GOV)
The Arthritis Research Institute of America

Ataxia

National Ataxia Foundation

Attention Deficit Disorder

National Attention Deficit Disorder Association
Children and Adults with Attention Deficit Disorder

Autism

Autism Society of America

Autoimmune Diseases

American Autoimmune Related Diseases Association

Batten's Disease

Batten's Disease Support and Research Association

Bechet's Disease

American Bechet's Disease Association

Birth Defects

March of Dimes

Blindness and Low Vision

American Federation for the Blind
Blindness Resource Center
Foundation Fighting Blindness
Glaucoma Research Foundation
National Federation of the Blind
National Eye Institute (US GOV)
Prevent Blindness America
The Low Vision Gateway

Brain Aneurysms

Brain Aneurysm Foundation Inc.

Brain Injuries (Traumatic)

Brain Injury Association, Inc.
Brain Trauma Foundation
Coma Recovery Association, Inc.

Brain Tumors

Acoustic Neuroma Association
American Brain Tumor Association
National Brain Tumor Foundation

Burns

American Burn Association

Cancer

American Cancer Society
American Institute for Cancer Research
Association of Cancer Online Resources
Cancer Research Foundation of America
National Alliance of Breast Cancer Organizations
National Breast Cancer Coalition
National Cancer Institute (US GOV)
National Kidney Cancer Association
National Ovarian Cancer Coallition
Susan G. Komen Breast Cancer Foundation
Y-ME National Breast Cancer Organization

Cardiovascular Disease

American Heart Association
National Heart, Lung and Blood Institute (US GOV)

Cerebral Palsy

United Cerebral Palsy

Charcot-Marie-Tooth

Charcot-Marie-Tooth Association

Chronic Fatigue Syndrome

CFIDS Foundation
Fibromyalgia Network

Chrons and Colitis

Chrons and Colitis Foundation of America

Cystic Fibrosis

Cystic Fibrosis Foundation

Cystinosis

Cystinosis Foundation

Deafness and Hearing Impairment

Alexander Grahm Bell Association for the Deaf & Hard of Hearing
American Society for Deaf Children
Deafness Research Foundation
National Association of the Deaf
National Institute on Deafness and Other Communication Disorders (US GOV)

Dental and Craniofacial Disorders

National Institute of Dental & Craniofacial Research (US GOV)

Developmental Disabilities

Birth Defects Research for Children, Inc.
FRAXA Research Foundation
March of Dimes Birth Defects Foundation
National Institute of Child Health and Human Development (US GOV)
The Family Village

Diabetes

American Diabetes Association
International Diabetes Foundation
Joslin Diabetes Center
Juvenile Diabetes Research Foundation
National Institute of Diabetes and Digestive and Kidney Diseases (US GOV)

Diethylstilbestrol Exposure (DES)

DES Action USA

Digestive Disorders

Foundation for Digestive Health and Nutrition
International Foundation for Functional Gastrointestinal Disorders
National Institute of Diabetes and Digestive and Kidney Diseases (US GOV)

Down Syndrome

Down Syndrome WWW Page
National Association for Down Syndrome
National Down Syndrome Society

Drug Abuse

National Institute on Drug Abuse (US GOV)

Dysphagia

Dysphagia Resource Center

Dystonia

Dystonia Medical Research Foundation

Eating Disorders

National Association of Anorexia Nervosa and Associated Disorders
National Eating Disorders Association

Ectodermal Dysplasias

National Center for Ectodermal Dysplasias

Ehlers-Danlos Syndrome (ED Syndrome)

Ehlers-Dermis National Foundation

Endometriosis

Endometriosis Association

Epidermolysis Bullosa

Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

Epilepsy

British Epilepsy Association (UK)
Epilepsy Canada (CA)
Epilepsy Foundation
The Epilepsy Foundation of Victoria (AU)
The Epilepsy Research Foundation (UK)
The National Society for Epilepsy (UK)

Fetal Alcohol Syndrome

National Organization on Fetal Alcohol Syndrome

Fibromyalgia

American Fibromyalgia Syndrome Association
Fibromyalgia Network
National Fibromyalgia Association

Fragile X Syndrome

FRAXA Research Foundation

Franconi Anemia

Franconi Anemia Research Fund, Inc.

Fredricks Ataxia

National Ataxia Foundation

Gaucher Disease

Gauchers Association (UK)
National Gaucher Foundation

Genetic Diseases

Hereditary Diseases Foundation
The Michael Fund
The National Foundation for Jewish Genetic Diseases, Inc.

Glaucoma

Glaucoma Research Foundation
The Glaucoma Foundation

Glycogen Storage Disease

Association for Glycogen Storage Disease

Guillain-Barre Syndrome

Guillain-Barre Syndrome Foundation International

Growth-Related Disorders

Human Growth Foundation
The Magic Foundation

Hemochromatosis

American Hemochromatosis Society

Hemophilia

National Hemophilia Foundation
World Federation of Hemophilia

Hepatitis

Hepatitis Foundation
Hepatitis B Foundation

Hansens Disease (Leprosy)

American Leprosy Missions, Inc.

Histiocytosis

Histiocytosis Association of America

Huntington's Disease

Huntington's Disease Association (UK)
Huntington's Disease Society of America

Hyperoxaluria

Oxalosis and Hyperoxaluria Foundation

Ichthyosis

Foundation for Ichthyosis and Related Skin Types

Interstitial Cystitis

Interstitial Cystitis Association

Iron Overload Diseases

Iron Disorders Institute
Iron Overload Diseases Association

Kidney Disease

American Association of Kidney Patients
National Institute of Diabetes and Digestive and Kidney Diseases (US GOV)
National Kidney Cancer Association
National Kidney Foundation
Polycystic Kidney Disease Research Foundation

Kyphosis

Scoliosis Research Society

Lenkodystrophy

United Lenkodystrophy Foundation

Leukemia

Leukemia and Lymphoma Society
Leukemia Research Foundation

Liver Diseases

American Liver Foundation

Lung Diseases

American Lung Association
National Heart, Lung and Blood Institute (US GOV)

Lupus

Lupus Foundation of America

Lyme Disease

American Lyme Disease Foundation
Lyme Disease Network

Lymphangioleiomyomatosis (LAM)

The L. A. M. Foundation

Lymphedema

National Lymphdema Network

Lymphoma

Lymphoma Research Foundation of America

Macular Disease

Macular Degeneration Foundation
The Macular Foundation, Inc.

Malignant Hyperthermia

Malignant Hyperthermia Association of the U. S.

Marfan Syndrome

National Marfan Foundation

Meningitis

Meningitis Foundation of America

Mental Disabilities (Mental Illness)

Mental Help Net
National Alliance for the Mentally Ill
National Institute of Mental Health (US GOV)
National Mental Health Association
The Federation of Families for Children's Mental Health

Mental Retardation

American Association on Mental Retardation
The Family Village

Migrane Headache

National Headache Foundation

Mucopolysaccharidoses (Mucolipidoses)

National MPS Society

Multiple Myeloma

International Myeloma Foundation

Multiple Sclerosis

National Multiple Sclerosis Society
The World of Multiple Sclerosis

Muscular Dystrophy

Muscular Dystrophy Association

Myasthenia Gravis

Myasthenia Gravis Foundation of America

Neurofibromatosis

National Neurofibromatosis Foundation

Obesity

National Institute of Diabetes and Digestive and Kidney Diseases (US GOV)

Osteoporosis

Creighton University Osteoporosis Research Center
National Osteoporosis Foundation
Osteogenesis Imperfecta Foundation, Inc.
Osteoporosis and Related Bone Diseases ~ NRC

Oxalosis

Oxalosis and Hyperoxaluria Foundation

Paget's Disease

The Paget Foundation

Pain Management

American Academy of Pain Management
American Chronic Pain Association
American Pain Society
National Foundation for the Treatment of Pain

Parkinson's Disease

American Parkinsons's Disease Association, Inc.
National Parkinson Foundation, Inc.
Parkinson's Disease Foundation, Inc.

Porphyria

American Porphyria Foundation

Pseudoxanthoma Elasticum

Pseudoxanthoma Elasticum International Inc.

Psoriasis

National Psoriasis Foundation

Pulmonary Diseases

American Lung Association

Rare Disorders

National Organization for Rare Disorders, Inc.

Reye's Syndrome

National Reye's Syndrome Foundation

Scleroderma (Systemic Sclerosis)

Scleroderma Foundation

Scoliosis

Scoliosis Research Society

Shwachman-Diamond Syndrome

Shwachman-Diamond Syndrome International

Sjogrens Syndrome

Sjogrens Syndrome Foundation

Skin Diseases

Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
Foundation for Ichthyosis and Related Skin Types
National Institute of Arthritis and Musculoskeletal and Skin Diseases (US GOV)
National Psoriasis Foundation

Sleep Disorders

National Sleep Foundation

Sotos Syndrome

Sotos Syndrome Support Association

Spina Bifida

Spina Bifida Association of America

Spinal Cord Injury

American Paralysis Association
American Spinal Cord Association
National Spinal Cord Injury Association
Paralyzed Veterans of America

Spondylitis

Spondylitis Association of America

Stroke

American Stroke Association
National Aphasia Association
National Institute of Neurological Disorders and Stroke (US GOV)
National Stroke Association

Streptococcus

Group B Strep Association

Sturge-Weber Syndrome

Sturge-Weber Foundation

Stuttering

National Center for Stuttering

Tay-Sachs Disease

National Tay-Sachs & Allied Diseases Association, Inc.

Thalassemia (Anemia)

Cooley's Anemia Foundation

Thyroid Disease

Thyroid Cancer Survivors' Association

Thyroid Federation International
Thyroid Federation of America

Tinnitus

American Tinnitus Association

Tourette Syndrome

Tourette Syndrome Association, Inc.

Transverse Myelitis

Transverse Myelitis Association

Trigeminal Neuralgia

Trigeminal Neuralgia Association

Tuberous Sclerosis

Tuberous Sclerosis Alliance

Urological Diseases

American Foundation for Urologic Diseases

Williams Syndrome

Lili Claire Foundation
Williams Syndrome Association
Williams Syndrome Foundation

Wilson's Disease

Wilson's Disease Association International

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Send E-mail comments and suggested links,
and please report any nonworking links to:

Rasch@cas.usf.edu

John D. Rasch, Ph.D., CRC
Department of Rehabilitation & Mental Health Counseling
College of Arts and Sciences
University of South Florida
4202 East Fowler Avenue, SOC 107
Tampa, FL 33620-8100, U.S.A.

Disclaimer:
Never try to diagnose or treat a problem
using internet resources. Consult a physician.
These sites are for general information only.
The author is not responsible for the content on any
site or how that content is used.