Blauner, Michael L, August 1980 - HOSPICE: BUSINESS OR CHARITY?
Abstract: In my thesis, I explore some of the problems facing
palliative care organizations, both nationally and in the state
of Florida. After tracing the history of this movement, as well
as the social undercurrents that spawned it, the thesis focuses
on the development of one hospice in the Tampa Bay area. The
financial situation of this hospice is discussed; its monetary
problems had led to a neglect of the emotional and physical needs
of its patient volunteers. Consequently, the numbers of active
volunteers connected with the organization had dwindled.
The above problems, in turn, are demonstrated to have been
engendered by recent state legislation that strictly regulates
all phases of hospice care, the requirements connected with being
the recipient of a grant from the Health Care Financing
Administration, and having an organization that has historically
allowed one person to run all facets of the operation rather
being structured along the more egalitarian lines of similar
institutions.
The conflicting beliefs that have motivated various leaders of
this organization are explored through the use of ethnoscientific
analyses of interviews conducted with various members of this
hospice. I demonstrate how these conflicts led to a lack of full
cooperation from the organization's Board of Directors. I claim
that the dearth of mutual assistance within the hospice structure
forced the organization's leaders to expand their expense
structure in order to hire people to do tasks that could have
been accomplished by qualified volunteers. This hospice's
immediate future will be saved by the H.C.F.A. grant, but the
organization must integrate itself into its surrounding community
and reduce the physical and emotional burdens with which the
volunteers must cope.
The cost effectiveness of hospice service to society is also
examined. Observations are made of the development of palliative
care programs in traditional health care institutions. These
services are contrasted with the duplicative costs of hospice
programs; additionally, questions are raised about the wisdom of
training specialists in dying who may succeed in further
isolating society from this phenomenon.
A series of recommendations are made whereby the Tampa Bay
hospice, by altering many procedures currently utilized by its
Board of Directors and staff, will achieve the ideals set forth
by its founders. The thesis concludes that this particular
organization has undergone many tribulations which have forced it
to exist primarily for its own bureaucracy; hopefully, the future
will re-establish that patient care is the raison d'etre of this
hospice.
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